Page 184 - Let them speak Towards a patient reported outcome measure set for

Chapter 7
children and caregivers of adults (ICC = 0.65 and 0.68 respectively), PROMIS
Sleep Disturbance for caregivers of adults (ICC = 0.61), PROMIS Anger for
adults and caregivers of adults (ICC = 0,42 and 0.68 respectively), and
PROMIS Cognitive Functioning – Abilities for adults (ICC = 0.54). Single-
item PROMs had ICCs ranging from 0.25 to 0.83.
Table 3. Reliability and efficiency of the PROMIS CATs and SFs and legacy questionnaires for
caregivers of children.
PROMIS CAT Reliability Number of items Floor
(%)
Ceiling
(%)
Number of
participants
PROMIS Mobility 2.4 5.1 5 6 5.0 0 40
PROMIS Relationships with Peer 2.8 5.2 5 9 5.0 0 40
PROMIS Depressive Symptoms 2.9 7.7 5 12 0 0 40
PROMIS Anxiety 3.2 5.5 5 12 0 0 40
PROMIS Fatigue 2.7 5.0 5 6 0 0 40
PROMIS Sleep Disturbance 2.5 4.8 4 12 0 0 40
Number of items PROMIS Anger 3.0 5 12.8 0 39
PROMIS Cognitive Function 2.5 7 5.1 2.6 39
Legacy subscale PROMIS SF Mean SE Mean Min Max
Mean SE Floor
(%)
Ceiling
(%)
Number of
participants
Reliability
(α)
Number of items Floor
(%)
Ceiling
(%)
Number of
participants1
PROMIS, Patient-Reported Outcomes Measurement Information System; CAT, Computerized
Adaptive Testing; PedsQL, Paediatric Quality of Life Inventory; CBCL, Child Behavior Checklist.
1After completing the core PROM set, participants could opt to complete additional legacy
questionnaires. Consequently, sample sizes for the legacy questionnaires were lower than for the
PROMIS CATs and SFs.
PedsQL Physical functioning 0.71 8 0 0 18
PedsQL Emotional functioning 0.64 5 0 5.6 18
PedsQL Social functioning 0.67 5 0 5.6 18
PedsQL School functioning 0.58 5 0 11.1 18
CBCL Anxious/depressed 0.84 13 12.5 0 16
CBCL Withdrawn/depressed 0.61 8 0 0 16
CBCL Social problems 0.36 11 0 0 16
CBCL Attention problems 0.81 10 0 0 16
CBCL Aggressive behaviour 0.93 18 6.3 0 16
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