Page 261 - Let them speak Towards a patient reported outcome measure set for

Towards a core PROM set for genetic syndromes:
from PROs to PROMs. Mini-symposium ‘Bridging
the gap from RARE to ID-CARE’, Amsterdam, the
Netherlands
Giving a voice to individuals with genetic
intellectual disability. Amsterdam
Kindersymposium, Amsterdam, The Netherlands
The final core patient reported outcome set for
individuals with genetic intellectual disability.
International Society of Quality of Life Research
(ISOQOL) 31st Annual Conference, Cologne,
Germany
Poster presentations
Giving a voice to individuals with a rare genetic
disorder associated with intellectual disability.
EuroNDD workshop ERN ITHACA, Amsterdam, The
Netherlands
Wat doet ertoe? PROMs voor mensen met een
VB. ZonMw congress ‘Focus op Onderzoek’,
Amersfoort, The Netherlands
Measuring what matters for individuals with rare
genetic neurodevelopmental disorders. The Society
for the Study of Behavioural Phenotypes (SSBP)
25th International Research Symposium, online
What matters most? A mixed-method study to
develop a core patient reported outcome set for
individuals with (genetic) intellectual disability.
EuroNDD workshop ERN ITHACA, Lisbon, Portugal
Patient reported outcomes used for individuals
with genetic intellectual disability - a scoping
review. International Society of Quality of Life
Research (ISOQOL) 31st Annual Conference,
Cologne, Germany
PhD portfolio
2024 0.5
2024 0.5
2024 0.5
2023 0.5
2023 0.5
2023 0.5
2024 0.5
2024 0.5
P
259