Page 210 - Let them speak Towards a patient reported outcome measure set for

208
Table 2. Core PROM set for GID.
No suitable PROM
PRO domain PRO subdomain Young children Children Adults
Proxy-report
(1 – 4 years)
Self-report
(8 – 17 years)
Proxy-report
(5 – 17 years)
Self-report
(≥ 18 years)
Quality of life NRS Well-being NRS Well-being NRS Well-being PROMIS Scale -
Global Health (1 item)
Perceived health NRS Health NRS Health NRS Health PROMIS Scale -
Global Health (1 item)
PROMIS Scale -
Global Health (1 item)
PROMIS Scale -
Global Health (1 item)
Physical
functioning/
activities
Mobility/
functioning of the
lower extremities
No suitable PROM PROMIS CAT –
Mobility
PROMIS CAT –
Mobility
PROMIS CAT -
Physical Function
PROMIS CAT -
Physical Function
Social
functioning/
participation
PROMIS CAT -
Relationships with
Peers
PROMIS CAT -
Relationships with
Peers
PROMIS CAT - Ability
to Participate in
Social Roles and
Activities
PROMIS Scale -
Global Health (1 item)
PROMIS CAT - Ability
to Participate in
Social Roles and
Activities
PROMIS Scale -
Global Health (1 item)
Mental
functioning
No suitable PROM PROMIS Scale -
PROMIS Scale -
Global Health (1 item)
Global Health (1 item)
PROMIS CAT
PROMIS CAT
PROMIS CAT
Depressive
symptoms
– Depressive
- Depressive
- Depressive
PROMIS CAT -
Depression
PROMIS CAT -
Depression
Symptoms
Symptoms
Symptoms
Anxiety/stress PROMIS CAT –
PROMIS CAT –
PROMIS CAT –
Anxiety
Anxiety
Anxiety
PROMIS CAT -
Anxiety
PROMIS CAT -
Anxiety
Anger/irritability PROMIS SF – Anger PROMIS SF – Anger PROMIS SF – Anger PROMIS SF – Anger PROMIS SF – Anger
Sensory over-
responsivity No suitable PROM No suitable PROM No suitable PROM No suitable PROM No suitable PROM
PROMIS SF -
Cognitive
functioning No suitable PROM PROMIS SF -
Cognitive Function
PROMIS SF -
Cognitive Function
Cognitive Functioning
– Abilities
PROMIS SF -
Cognitive Functioning
– Abilities
Communication
Expressive
communication No suitable PROM No suitable PROM No suitable PROM No suitable PROM No suitable PROM
Receptive
No suitable PROM No suitable PROM No suitable PROM No suitable PROM No suitable PROM
communication
Chapter 8
Proxy-report
(≥ 18 years)