Page 191 - Let them speak Towards a patient reported outcome measure set for

Evaluating the core PROM set
Table 9. (Hypothesized) correlations between the core PROM set and legacy subscales for
caregivers of adults.
Core PROM set Legacy subscale Hypothesized
correlation
Pearson
correlation
Confirmed Number of
participants
PROMIS Global
Health 011
PROMIS Physical
Function2
PROMIS Social
Roles and
Activities2
PROMIS Global
Health 041
PROMIS
Depression2
≥ 0.40 0.58 Yes 274
≥ 0.40 0.67 Yes 274
≥ 0.40 0.68 Yes 274
SF-36 General
health
SF-36 Physical
functioning
SF-36 Social
functioning
SF-36 Emotional
well-being
SF-36 Emotional
well-being
≥ 0.40 0.49 Yes 274
≥ -0.40 -0.73 Yes 274
ABCL Withdrawn ≥ 0.40 0.50 Yes 20
PROMIS Anxiety2 SF-36 Emotional
well-being
ABCL Anxious/
depressed
PROMIS Anger3 SF-36 Emotional
well-being
ABCL Aggressive
behaviour
ABCL Attention
problems
≥ -0.40 -0.57 Yes 274
≥ 0.40 0.20 No 20
≥ -0.40 -0.75 Yes 274
≥ 0.40 0.59 Yes 20
PROMIS Cognitive
Function –
Abilities3
PROMIS Fatigue2 SF-36 Energy/
fatigue
NRS Fatigue SF-36 Energy/
fatigue
PROMIS Sleep
Disturbance2
SF-36 Energy/
fatigue
NRS Pain SF-36 Bodily pain ≥ -0.40 -0.54 ≥ -0.40 -0.19 No 20
≥ -0.40 -0.73 Yes 274
≥ -0.40 -0.31 No 274
≥ -0.40 -0.56 Yes 274
274
For Global02, Amsterdam Inventory for Auditory and Disability Handicap, Health Monitor Central
Bureau of Statistics, Nausea and Vomiting GISX49, Constipation GISX64, Belly Pain GISX78, Reflux
GISX2 and GISX22, and Gas and Bloating GISX105 no suitable subscale of a legacy questionnaire
was available.
PROM, patient reported outcome measure; NRS, Numeric Rating Scale.
The symbol ≥ represents equal or stronger correlation.
1PROMIS single-item.
2PROMIS Computerized Adaptive Test.
3PROMIS Short Form.
4One caregiver completed only the legacy questionnaires; therefore, this N for caregivers of adults
is one lower than in the reliability analyses.
7
Yes Secondary analysis (known-group validity) compared only the mean
PROMIS T-scores of the adult self-reports, as the ID/No ID groups for
caregivers of children and caregivers of adults were too small. These
analyses showed that adults with ID scored lower on PROMIS Social roles
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