Page 179 - Let them speak Towards a patient reported outcome measure set for

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Vision Gastro-intestinal
symptoms
Hearing AIADH (1 item) (44) AIADH (1 item) (44) AIADH (1 item) (44)
FVQ-CYP (1 item) (45) Health Monitor CBS (1 item) (46) Health Monitor CBS (1 item) (46)
PROMIS Scale– Gastrointestinal
PROMIS Scale– Gastrointestinal
PROMIS Scale– Gastrointestinal
Nausea and Vomiting, PROMIS
Nausea and Vomiting, PROMIS
Nausea and Vomiting, PROMIS
Scale – Gastrointestinal
Scale – Gastrointestinal
Scale – Gastrointestinal
Constipation, PROMIS
Constipation, PROMIS
Constipation, PROMIS
Scale – Gastrointestinal
Scale – Gastrointestinal
Scale – Gastrointestinal
Belly Pain, PROMIS Scale –
Belly Pain, PROMIS Scale –
Belly Pain, PROMIS Scale –
Gastrointestinal Reflux, PROMIS
Gastrointestinal Reflux, PROMIS
Gastrointestinal Reflux, PROMIS
Scale – Gastrointestinal Gas and
Scale – Gastrointestinal Gas and
Scale – Gastrointestinal Gas and
Bloating (6 items) (47)
Bloating (6 items) (47)
Bloating (6 items) (47)
PRO, patient reported outcome; NRS, Numeric Rating Scale, PROM, patient reported outcome measure; PROMIS, Patient-Reported Outcomes Measurement
Information System; CAT, Computerized Adaptive Testing; SF, Short Form; AIADH, Amsterdam Inventory for Auditory and Disability Handicap; FVQ-CYP,
Functional Vision Questionnaire for Children and Young People; CBS, Central Bureau of Statistics.
*For the PROs fatigue and sleep (children only), both a NRS and a PROMIS CAT were validated. The NRS aligns with the Dutch generic PROM set for these
domains and may be used as a screening tool in care, while the PROMIS CAT is better suited for research purposes.
7
Evaluating the core PROM set