Page 153 - Let them speak Towards a patient reported outcome measure set for

PRO domain PRO domain conceptualisation Table 4. Final generic core PRO set
Overarching 1. Quality of life Perceived overall quality of life. None N.A.
2. Perceived
health
Functioning 3. Physical
functioning/
activities
5. Social
functioning/
participation
6. Mental
functioning
Perceived overall health. None N.A.
Ability to perform everyday activities. 4. Mobility/
functioning
of the lower
extremities
None N.A.
Ability to take part in social roles and
activities, being able to engage with
others.
Overall evaluation of one’s mental health. PRO subdomain PRO subdomain conceptualisation
Activities of physical mobility, such as moving,
walking, running, and cycling.
7. Depressive
symptoms
8. Anxiety/stress 9. Anger/
irritability
10. Sensory over-
responsivity
Experienced depressive symptoms, negative mood
(for example: sadness due to feeling overwhelmed),
suicidal thoughts.
Experienced symptoms of anxiety, feelings of panic,
panic attacks, worry (about the future), tension/
stress (due to feeling overwhelmed), nervousness,
restlessness, compulsive thoughts, fretting, feeling
threatened, fear of being abandoned/being alone,
fear of hospital visits and medical procedures, fear of
social interaction, fear of not being able to keep up in
society/at school, fear of trusting others, insecurity.
Experienced feelings of anger, frustration, irritability.
An over-response to sensory stimuli. Avoidance of
sensory stimuli. Sensitive to crowded environments,
loud noise, lots of noise/language/questions, bright
light, strong smell or taste and different textures of
food and clothing.
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Establishing the core PRO set