Page 133 - Let them speak Towards a patient reported outcome measure set for
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Chapter 6
What matters most?
Developing a core patient
reported outcome set for
individuals with genetic
intellectual disabilities:
an international Delphi study
Nadia Y. van Silfhout, Maud M. van Muilekom, Leonie A. Menke,
Clara D. van Karnebeek, Lotte Haverman, Agnies M. van Eeghen
Journal of Intellectual Disability Research. 2026.
